RARE-e-CONNECT at the European Conference on Rare Diseases and Orphan Drugs ECRD 2022

The RARE-e-CONNECT team presented the poster Introducing collaborative practices for a state-of-the-art rare disease patient care and support in Cyprus.


This poster presents the workings of this EU and nationally co-funded project, developing a patient-centred network technology for sourcing and disseminating specialized rare disease knowledge into the local healthcare community and aiming for national progress in Rare Diseases (amidst efforts to integrate ERN knowledge assets to MS health systems).

Thank you @Eurordis for giving us the opportunity to present our work up to now and make connections with stakeholders, patients and professionals in Europe for greater benefit.