Online communities

RARE-e-CONNECT communities provide secure spaces for knowledge and resource sharing between Healthcare Professionals and between Patients respectively.

Each community represents a group of diseases organised according to the organ or organ complex they primarily affect, or their cause (where it is known). It provides a space for members to discuss topics of concern and share must-have resources.

Join one or more of the 24 available communities for the disease you are interested in.


This section is only accessible to RARE-e-CONNECT members.