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  • Medical teams
  • Patients
  • About
  • Communities
  • Specialist centres
    • ALL
    • Bone Diseases
    • Cardiovascular Disorders
    • Chromosomal Abnormalities
    • Congenital malformations and Genetic/Hereditary Syndromes
    • Gastroenterological Disorders
    • Dermatological Diseases
    • Ear Nose and Throat and Craniofacial disorders
    • Haematological Diseases and Malignancies
    • Hepatic Diseases
    • Hereditary Metabolic Disorders
    • Immunological Disorders
    • Male and Female Reproductive Diseases
    • Neoplastic Diseases/ Oncology
    • Nephrological Diseases
    • Neurological Diseases
    • Neuromuscular diseases
    • Obstetric & Perinatal diseases
    • Ophthalmological diseases
    • Psychiatric Disorders
    • Rare Endocrine Diseases
    • Respiratory diseases
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Blog

Invisible disabilities and discrimination

PLATINUM Award for RARE-e-CONNECT at the Cyprus Healthcare Business Awards

Awards

RARE-e-CONNECT at the European Conference on Rare Diseases and Orphan Drugs ECRD 2022

Conferences

RARE-e-CONNECT on IRDiRC's State of Play - Stimulating multistakeholder engagement

Awards, Publications

Trial gene therapy for Duchenne Muscular Dystrophy

Duchenne, GeneTherapy, Neuromuscular Diseases , RareDiseases, DuchenneMuscularDystrophy

Patient experience: LAM disease, work and life

Invisible disabilities, Rare diseases at work, LAM disease, Lymphangioleiomyomatosis

Patient experiences at the work market: Myasthenia Gravis

Invisible disabilities, Myasthenia Gravis, Rare diseases at work

Patient experiences at school: Cystic Fibrosis and invisible disabilities

Invisible disabilities, Cystic fibrosis

Αόρατες Αναπηρίες και Σπάνιες Παθήσεις - Ότι δεν φαίνεται δεν σημαίνει ότι δεν υπάρχει

Rare Diseases: What are they?

More Articles ...

  • What needs does RARE-e-CONNECT respond to?
  • First RARE-e-CONNECT webinar for Healthcare Professionals - Primary Immunodeficiencies: How to identify children with immunodeficiency
  • Health Commissioner Stella Kyriakides on networking for progress in Rare Diseases
  • Participate now!
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The Project POST-DOC/0916/0222 is co-financed by the European Regional Development Fund and the Republic of Cyprus through the Research and Innovation Foundation. The Host Organisation is Cyprus Alliance for Rare Disorders.

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