Scientific publication: Co-constructing effective collective intelligence networks in rare diseases: a mixed method approach to identify the parameters that matter for patients, professionals and policy-makers, piloted in Cyprus.
Blog
e-Hanbook for Telecollaboration in Healthcare: Findings and Lessons Learned in Rare Diseases
A PID causing a heavy burden of disease must always be recognised as a disability
Rare Diseases, Invisible disabilities, Rare diseases at work, Primary Immunodeficiencies, Positions
Chronic pain and management
Trimethylaminuria
Rare Diseases, Trimethylaminuria, Hereditary metabolic disorders
Invisible disabilities and discrimination
PLATINUM Award for RARE-e-CONNECT at the Cyprus Healthcare Business Awards
The Project POST-DOC/0916/0222 is co-financed by the European Regional Development Fund and the Republic of Cyprus through the Research and Innovation Foundation. The Host Organisation is Cyprus Alliance for Rare Disorders.