RARE-e-CONNECT has been funded by the European Regional Development Fund and the Republic of Cyprus through the Research and Innovation Foundation to produce research in two areas:
Bringing together geographically-dispersed healthcare professionals and patients, the RARE-e-CONNECT electronic platform provides the only interactive forum in Cyprus to share and discuss rare diseases and treatments, which also has the potential to generate information for the formulation of national RD-related standards. This information will be collected, analysed and channelled to thecompetent authorities and decision-makers.
In short, RARE-e-CONNECT outcomes will be used to explore impact, sustainability and expansion mechanisms of such technology solutions for knowledge dissemination, disease-management and the provision of quality healthcare services in rare diseases and elsewhere.